This Disease from Up Top

It’s unnerving not knowing where you are. Like I’m on the bottom level of a parking deck (garage) with no idea how long or far or deep or wide or harrowing this thing goes. Was this last month of infusions a definitive leap toward healing or a total wash? Do I move on to the next phase, or do I start over with something else?

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Teach Me How to Live

Of course, I want to travel again one day, set loose to wander once more. I want it badly. But for now, I do have this strange desire to be settled. To stay home and enjoy safety and solitude. And I don’t necessarily feel relegated to this reality, forced into it against my wandering will. For all this restless angst I’ve had since childhood, perhaps I’m finally stumbling onto the cure?

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A Time to Refrain from Embracing

Looking down at my precious niece in my arms, I realized it’s really something, how we need physical touch to survive. Need to be swaddled. Need to be held. Need to feel the warmth of another human emanating against us, if only to affirm to one another we are not alone in this desert. To embrace for my soul or not to embrace for my body? Life with an autoimmune disease during the pandemic of the century: one calculated risk after another.

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